Our Miracle is Here

Our Miracle is Here
Welcome Little Angel Grayson James Walker

Wednesday, May 16, 2012

Forget me Not

Today marks three months and one days since we said hello and goodbye to Grayson.. You'd think it'd get easier with time, but I would disagree, or right now anyways.  I miss him more than ever.  I see all the pictures of other friends babies and wonder what he would look like.  There is a place in my heart that is missing.  I don't want Grayson to be forgotten. I want his life to always be remembered.  He was a servant, God's little servant.  He was in my arms briefly and I just wish I could go back to that day.  I wish I could remember ever detail. As I was watching Private Practice last night, I was taken back to that day for a moment.  Amelia, one of the doctors, had a baby with anencephaly.  As she voiced what she was feeling that day, I too can relate.  I remember lying in the hospital bed wondering if he was going to be alive or how long he was going to live.  I wondered what he was going to look like.  So many thoughts rushed through my brain that Wednesday morning.  Of course he was perfect and fought for 8 hours.  He was so beautiful and sweet.  His whimpers are engrained in my mind and heart. It was the sweetest noise.  As I watched the show, I saw every little thing about the baby that reminded me of Grayson. 

88 comments:

  1. I just found your story this morning by a friend that "liked" one of Grayson's photos on Facebook. I couldn't help but click on the photo which led me to your profile, which then led me to your blog. I have never read a story that has touched my heart this much. I lost a son at 6 months pregnant for an unkown reason and as devastating as it is to me, to meet him would've been harder. I cannot imagine the pain you go through day to day. I admire your strength and your trust in God. Grayson, you and your family will be in my prayers from this day forward. Thank you for sharing the wonderful life of your beautiful son Grayson.

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  2. Hi, a friend of mine "liked" one of your lil angels pics on facebook. And I discovered your story. I lost my first child in '92, I would have to agree with u, it doesn't get any easier, just different. since losing her God has blessed me with wonderful children. Reading your story has been such a blessing to me. It took me a long time to realize God had a plan for me. It's great to read your story and know that from the beginning u knew your lil angel was going to touch Sooo many lives. I will b praying for u all. Grayson's your guardian angel now, he'll always b near. God bless you...

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  3. In His word, God promises us that He shall not give us anymore than we can bare. Grayson was a shining star that filtered his light to this world but for only a brief time. His light shall shine throughout Heaven and guide you home one day. Sometimes we have to say goodbye early and sometimes later, but nonetheless, with those gifts from Him, we know that one day we will be there with him. Grayson will be so happy to see you all, and for that you can smile.

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  4. He is so beautiful R.I.P little onr you are loved. GOD BLESS!!

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  5. I just watched your beautiful video. Thank you for sharing your amazing story that has touched so many. You are so strong. Please know that you and your family are in my thoughts. Rest in Peace Grayson James.

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  6. Heather ... we met ages ago at MFuge. I just logged into Facebook today and saw your photo with Grayson. I was awed by your faith when we were younger, and I am even more so today.

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  7. Dear Heather, I learned of your sweet Grayson's life the day he was born via a mutual friend on Facebook. I think of and pray for your family often. I admire your courage in being so open and sharing your thoughts and experience with all who have read about Grayson's life. In just 8 hours on this earth, this tiny but perfect child of God showed me tenderness, taught me about unconditional love, and humbled me--quite a legacy if you ask me. All of that without even having the honor of meeting him in person--simply through your words and photos. THANK YOU for allowing others to be blessed through your family's story. I know I can't imagine your pain, I will keep praying for your peace and comfort. ~Beth M.

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  8. Man.... I'm sorry to hear that your son didn't make it, but didn't you kinda know this a long time in advance? Why put your family through that?

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    1. Life is full of challenges. You don't kill your kids because you know it's going to be tough for them. You love through the difficulty, love them through the pain even if it means walking with them right up to the edge of this life and hold them closely as they pass on to the next. It's a lesson I wish more people understood.

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    2. Either way, Grayson would have die, but Heather has the comfort of knowing that her child didn't die at her hand. Lots to be said for that.

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    3. Plasticmind. What you said is beautiful. I agree and what a positive, God enriched way of looking at difficult times and challenges. Well put.

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  9. Found your story on facebook, and I just wanted to say that your love for Grayson is such a picture of God's love for His children.

    I will be praying for you and your family. I have a dear friend who just found out her son has anencephaly, so your journey is so near to my heart.

    May God's peace be with you and your family.

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  10. Heather,
    What a beautiful reflection of yours and Grayson's story. More importantly, what an amazing woman of Christ you are. To have been in your shoes, to BE in your shoes, I know I could not do as gracefully. Your story has inspired me, educated me and given me the assurance that our God is always in control, and will always map our lives.
    I pray that peace be with you, and please continue your testament on Grayson's sweet life.
    You are simply amazing.
    God bless you and your family!

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  11. You were meant to be Grayson's family. And that sweet, beautiful, precious soul, felt all your love for him. When a little one is here for so short a time, I try to find comfort in that Our Creator missed them so much, They could bear to share them with this world, for a very little time. Prayers for strength and comfort, for Graysons' mama, daddy, brother and sister.

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  13. Dear Heather,

    I just came across your story - I just wanted to show my support and add to the voices who say "you did the right thing".

    You're right, Grayson was and is beautiful and he'll be watching over you from heaven looking after his family whole family who welcomed him into this world and who recognized him as a person no matter who brief his life was.

    Stay strong -

    God Bless you all -
    Jenny.

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  14. Dear Heather,

    I just learned about precious Grayson last night and read your blog until long after midnight. I went to sleep praying for you and your family. Grayson is well and strong now and enjoying his time in Heaven. You WILL see him again. In the meantime, I pray each day gets a little easier and the pain a little softer for you and your family.

    Blessings,
    Dianne
    www.mysouthernheart.com

    p.s. Memphis is home to me although I live in the Pacific Northwest now.

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  15. I cant imagine the pain that you are enduring...and have went thru. You are an amazing strong woman!!! This isnt what our God wanted for you. Please if you have a bible read John 5:28, 29....and Revelation 21: 3,4 ...your story touched my heart so much..please if you ever need to talk email I am there

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  16. Thank you for sharing something that is absolutely priceless. A way to see the world and life through eyes as our Lord intended to be. Thank you for the gift.

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  17. Your baby Grayson is truly beautiful. Thank you so much for sharing him with the world.

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  18. Hello Heather,

    Thank you for sharing Grayson with us. I am the creator of stillbirthday, and wanted to let you know that I wrote an article for you, in regard to what happened with Facebook.
    http://stillbirthday.com/2012/05/19/we-want-to-see-you-grayson/

    With love,
    Heidi Faith

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  19. Heather: I just read your story in the paper and am outraged at Facebook's action! Of course you would want to share Grayson. He was precious and real and, obviously, well loved.

    Best,
    Bonnie

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  20. I'm so sorry about your loss and the cruelty you had to deal with via Facebook. I think your son was beautiful. God bless you and your family.

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  21. These photos of your family and your son show nothing but unconditional love and joy. It's a shame that Facebook had to make into something its not. Sorry for your loss and may you & your family always be blessed.

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  22. I lost my second daughter 8 years ago. She was delivered at full term but was unexpectedly stillborn. Our hearts truly broke that day. Your son is beautiful. If Grayson makes some uncomfortable, then they have much to learn about life and beauty and the many forms it takes. How sad for them. To you, I say congratulations on the birth of your sweet baby. You have parented him and loved him giving him the gift of dignity in his brief but important life. All children should be wanted so deeply and loved so much.
    -Another mother to an angel

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  23. I just stumbled across your story online and am so encouraged by your faith through such a painful experience. I know God doesn't make mistakes and see the whole FB debacle as one more way God could use Grayson's story--and yours--to bring glory to Himself. And, one more way God could allow Grayson's memory to live on in so many lives. Thank you for sharing your story. I pray God will bring healing a peace in a way we cannot imagine possible. He is capable.

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    1. Heather..

      One of my Facebook friends posted your story and how FB would not let you put up your pictures of Grayson. I reposted the story on my FB page and commented on how truly sad this makes me. For you and all of us who have lost children. We lost our first child on December 9, 1999. She will be 13 this year and I miss her often. It will get better at some point. But there will always be the emptiness. Hold on to your memories and your pictures. They will get you through the tough times. Hugs to you from another mom of angel.

      Michelle

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  24. so very sorry to read of your loss and of your horrible treatment by facebook. your little boy has the face of an angel and he will not be forgotten in the hearts of all who love him. my deepest sympathy to you all.

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  25. I listened to your story and read your blog today while nursing my 7 week old son and my heart is breaking for you! Thank you so much for choosing life and for sharing your story so that others may hopefully learn just how precious every life is. Your baby was a gift that brought much sorrow, but also so much joy to your family. I love the pictures of your children all together and you and your husband adoring your son just as God created him. You are in my thoughts and prayers this evening and will remain there. I realize I am truly blessed to have eleven perfectly healthy children and although I don't understand God's plan for you, I am so glad that you are allowing Him to be in control. May God give you peace in the years to come as you continue to grieve your loss and celebrate the life of little Grayson.

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  26. I am so sorry that you lost your sweet little boy and for the way Facebook has treated you. You have every right to remember your baby and to share his short life with the world. He will be in all our hearts.

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  27. Heather,
    I am amazed at your courage, and your ability to share your journey with us. It is heartbreaking, and very inspiring. May God bless you and your beautiful family. Baby Greyson is in heaven watching over you and your family.

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  28. You are an amazing family and a true inspiration! I am very sorry that you have had to experience such a loss that I couldnt imagine being a mother of 5 but I will def never forget this story and will hold you all in my prayers. May you receive every blessing God can give you for the rest of your days!

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  29. Way to be strong, mom & pop! He was a little, beautiful angel.

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  30. I admire your strength and willingness to share. What a gift you have given the world by educating them with the story of your blessing and loss. Grief is a strange thing as it sneaks up on you when you least expect it. It's shades change like a chamelion's. How lucky he is to have spent his only moments wrapped in your love and kindness.

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  31. bless your heart , I just saw your story on the web and came straight here. I know a couple ( close friends) they had 2 such beautiful angels like you Grayson and to ever say that they were not to be looked at due to being not up to standards of some kind - oh no. Little Don and Jennie were so special to all who knew their parents . I see very special gifts from God thru them and Little Grayson. I posted your story on my facebook page and on a page called "Support For Angel Mommies" -
    "http://www.facebook.com/pages/Support-For-Angel-Mommies/278967355532362" it is a site for mothers and fathers who have little angels with God now. No judging or badgering of any kind , just a way to get advice and give or to be able to say what is in your heart , it is not to old and I believe you may get some comfort with it . I don't mean to butt in to your life - but I am mad as can be at Facebook -- HOW DARE THEY ?????
    Love and prayers to you and your family..Blessings to all. -- Teresa

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  32. You are a beautiful soul. Thanks for sharing your story.

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  33. Heather and Family. I read and heard your story on AOL/Huffpost and had to see and hear more. Blessings to you and Sisterly love from Florida. Your family is a lovely example of what Christ's love and light should be in our world. Thank you for letting that light shine. So sorry you were not able to hold him longer. One day... In Him, Libby - Ft. Myers

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  35. Hi Heather, I just found your story on the Huffington Post and I just had to find you. I am so glad you have found a place to post pictures of your beautiful family and your precious Grayson. My heart breaks for you... 5 years ago on the 17th my best friend lost her son at 20 weeks and a year and half ago my sister and brother in law lost their little girl at birth. I know the loss of your precious baby must be the hardest thing you have ever gone through... I hope you can find comfort knowing that their are others out there praying for you and your family.

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  36. Dear Walker Family, we do not know each other but I had to write and express my sorrow for your loss. You have a beautiful and brave family. I lost my daughter Alora Grace 15 years ago on Mothers Day, and there isn't a day that went by when I didn't think about her until now we walk together in love and thought,body and spirit.. Love each other fiercely, communicate openly, share your happiness and sorrows and don't forget to speak his name..The more you do, the more others will remember that it's okay to say it out loud..Blessings to you. Thank you for posting his beautiful photos..Your friend in MA, Cara

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  37. I am so sorry for your loss and what facebook did by removing those photos and then banning you was just plain wrong. They owe you an apology. Hugs and prayers from North Dakota.

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  38. I am the mother to a beautiful 22 year old son with Prader-Willi Syndrome. I believe our children are gifts from God with lessons to teach us. I know I am a better person for having my son, and I'm sure you are as well. Peace and blessings to you and your family.

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  39. Having lost not a child but someone that was my sun, my moon and my stars for 11 years I believe you never get over it.

    That which brings us the most joy brings us the most pain. There is a mixed blessing in your pain and it's that you experienced a joy some never do.

    You never get over it. I found that time serves as a mere intermission, it gives you a moment to breathe and than its back on again as if it were yesterday. After 23 years I still feel it as if were just yesterday.

    You are blessed in having known the love of Grayson James Walker.

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  40. May the Lord comfort you in your loss. My nephew was born with anencephaly, and he would be 12 years old. I know my sister in law still grieves the loss as his mother, and of course we all do too. He was no less of a baby and was perfect like your son. I'm disappointed in facebook, but on the flip side, I would have never read your story. So God can take something and turn it into something much bigger. There definitely needs a better understanding of anencephaly.
    God Bless~

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  41. Oh Heather!

    My heart goes out to you and your entire family! Your pictures truly show the love and pride all of you shared for Grayson.

    You exemplify all that we should strive to be in this world. You are a special person and an inspiration to all parents. You love unconditionally with all that you are and all that you have to give. It is so obvious in your pictures, how much love and pride you have for your son!

    I met my husband later in life. Therefore, we married and had our baby at an older age. I remember being told all the risks of pregnancy at my age. I knew I would love my baby no matter what happened. Who is to say what a "perfect" baby is anyway?

    You do not have to ever worry about Grayson being forgotten. I know I will forever remember him, and your family - you have touched my heart in such a special way. He will live on in you, and your husband, and children.

    May God continue to bless you!

    Rest in Peace dear sweet baby Grayson!

    I know we don't know each other, but if ever you need a friend, you have one in me...

    Sending love, peace, prayers, and support your way...

    Kim
    XOXO

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  42. Heather and Patrick, I've never lost a child and cannot even begin to understand your pain and grief, but my heart goes out to you. Your son was beautiful and was lucky to be surrounded by such a loving family.

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  43. I found your story through Huffinton Post as I was browsing the site like I do every morning. I was so touched and so saddened at the same time. My mother lost my brother Justin to Anechephaly in 199. After having 4 healthy girls, her and my dad were excited to be having a baby boy, they didn't find out about the disease till the eighth month. He died in the womb sometime around his due date. She tells me she recalls the hearing the nurse cry as she cleaned up his little body and prepared him so my parents could say goodbye. A few days later while my mother laid in bed, she said she felt little arms around her, comforting her even though she was in the room alone. My prayers go out for you and your family. My mother did find healing and closure, but it did take time and now almost 22 years later we all still remember him on holidays and his birthday. I think those picture are beautiful and I admire your strength. Bless you and your family

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  44. Honey-12 years ago, in March,our last born was born still. 12 years. I still miss her. That first year is so hard. All of the "firsts". Firsts of holidays, birthdays. The best advice I was given was to allow myself to feeeeeel every emotion that I felt. Whether it was despair, sadness, anger, relief. That relief was a mean one, but I did feel it at times. When you allow yourself to feel every emotion fully, it gets a little easier next time. It is good that you write about little Grayson. Thank you so much for sharing him. God bless you!

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  45. Dear Walker Family..My condolences..I saw your story on the news and I can't imagine what your going through. My heart goes out to your family. And I couldn't believe that anyone would post something so mean about a baby. Thank you so much for sharing your story and I dont think a picture of your baby is offensive in fact what they did by removing your picture was offensive. Your baby was beautiful and I just want to send you some love & hugs from Florida.

    Zara

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  46. Dear Walker Family,

    I feel so blessed to know about the life of your son Grayson. To know that his 8 hours spent here on this earth were filled with an unspeakible amount of love. That there was not a moment that he didn't sense how important, special, loved, and unforgetable he was. As hard as it is to understand, God certainly knew what he was doing making you Grayson's family. My heart aches for your loss and rejoices at the thought of Grayson's moments with you and then those first moments with Jesus. I wish you didn't have to go through this pain, heart ache, and absence of your son. It is not right what Facebook did but with them having done that your beautiful son will be known by so many. His life will live within my heart and now my prayers can be lifted up to your family. Thank you for sharing your son's moments with me, I feel so privleged.
    Father God, I thank you Lord that you blessed the Walker family with those precious and beautiful moments with their son. His passing has left such heartache within the Walker Family and I lift them up to you Lord. I can just imagine the angels were praising at the homecoming of your beautiful child Grayson. To know that he was met by Jesus, however the absence here on earth for this family is great. In time Father God, I pray that you will bring a peace to their hearts, as only you can. I pray for Grayson's brother and sister. They are young now but one day there will be a greater understanding of their loss. I pray for that day. I pray for his mommy and daddy, you know what their souls need, Lord I pray that you will provided it. It Jesus' holy name, Amen!

    Thank you Walker Family, you are beautiful (all 5 of you!)

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  47. I love you all!. You are a strong woman an amazing mom. Thank you for sharing your life & family with the world. Grayson is an angel!

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  48. Im aware my comment will either be removed, either censored, it doesnt matter, that doesnt change the reality. U are criminals. Criminals for not aborting that abomination. It wasnt a child, it was an abomination. One more proof that god is just ur imaginary friend. Im glad ur "son" didnt survive, he didnt ask to be born. No sane woman would have go on with her pregnancy knowing she had given birth to smth like that. But again u are sheeple, so all is understood. Its not enuff the useless sufferance countless childrent are put thru, u had to do that... Coz "god" takes care, right? I saw and u saw it for urselves, bunch of retards... Deleting my comment or those comments that tell the truth shows nothing buty ur sheer hypocrisy...

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    1. Christinne you are an example of pure ignorance.

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    2. Christinne I pray no tragedy hits your door. Your comment was way off base. Did your parents not teach you "if you cant say something nice, dont say anything at all"? If you can say with honesty you and everyone u know is perfect and perfectly form, then you are better than anybody I know. Everyone is imperfect n way or another. In your case its your heart. Did you happen to think, no of course you didnt, or u wouldnt have made these comments, that just maybe God put this child in existance for a purpose? I admire this family. It took a lot of courage. So until u suffer in this manner, how bout keeping your opinions to yourself...because nobody really wants to hear them

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    3. Crhistinne, the only abomination here is YOU.

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    4. I'm horrified at this post! Just when I think people cannot be more cruel or judgemental, I find something like this. Just breaks my heart.

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    5. Christinne,

      How does it feel to have such a cruel, stone cold heart beating in your chest?

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    6. Christine - I will pray for you because you need someone to show you true love - as you are full of hate. What you said is not only cruel but absolutely abhorrent - especially from a woman.

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    7. Viciously cruel, hateful and ignorant. Abortion is an abomination. Who are you to judge? I will pray that God will forgive and heal you of your insufferable hatred.

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    8. Christine,

      I will pray for you. That you will grow a heart. I refuse to give you any attention on this sweet baby boy's page. I hope your comment is soon deleted.

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  49. I'm must simply say that you are a wonderful family. I read about this illness, I saw pictures in my books. As a med-student you get to learn not to attach feelings, to stay objective. You taught me my most valuable lesson. There are people behind every illness and you should never ever forget that. Your wonderful son did not suffer, he got to experience true love, isn't that what most of us spend a life time in search of? I wish you all the best from Sweden.

    Love

    Paulina

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  50. I m sorry for your loss.Every child is a blessing,a gift and it must be cherisd.dont mind the evil comments on Grayson.It doesnt matter what other people think.Only thing that matters is how you feel.U love Grayson-thats inaf.

    - Finland-

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  51. I saw your story on The Huffington Post this morning. I am very sorry for your loss. I too saw the Private Practice episode. I didn't think at the time about reality and other babies that had or would be born that way. I know on the show the baby gave life to many others. I'm not sure if Grayson did or not, but he impacted a lot of lives by coming into this world. You have a beautiful family and I pray that God gives you all strength and continued peace to live as normal a life as possible. God bless you all.

    Sheila
    Hernando, MS

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  52. Walker family thank you for sharing. I'd of done the same.

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  53. I spent all night and all morning reading your blog. Such an amazing journey and a sweet story.

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  54. Hi Heather i´m writing to you from PerĂº, i found about your story on the local news and then i found your blog...i just want to say, i´m so happy that a i got to know graysons and your family story, this changes peoples life, it´s so powerfull, God bless you, you have de strongest family ever, i admire you so much!! now I know what pure love can make us do....(so sorry for my english..still learning)

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  55. I found your blog and just read your story. There is not doubt in my mind that God chose you and Patrick to be Grayson's parents because He knew you would love him through his time here on earth, however short that would be. Your loving tribute to your son in all you did and continue to do is inspiring.
    My first pregnancy ended in a miscarriage. I still remember that feeling that you describe of how life around you goes on. I felt that very same way! I felt that my whole world had screeched to a halt and just could NOT understand why everyone else's didn't do the same! It took time for me to understand that Life goes on because God deemed it so. Life goes on because God blessed us with His Love.
    I pray that each day you continue to feel God's Love and Grace pouring down on you and your family. It is so clear to me that Grayson lives on through you all. Never doubt that Grayson's time here has made a profound impact. Love and Blessings to you all. Linda L.

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  56. Thank you for inspiring me today!

    Your family, including the little one in heaven of course, are needed in this world!

    Peace,
    Fr. Leo

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  57. Sorry to hear about your little boy Grayson we was so adorable may he rest in peace and that you may reunite one day with all my love.

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  58. I just read about baby Grayson today. I'm so sorry that he was here for such a short time. He is with Jesus in his arms. I lost twins and one lived for 5 monutes and the other was still born. May God be with you and your family. xoxo

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  59. Heather and Patrick I just want to say what an inspiration you two are. I have had my own struggles and the loss of a beautiful little boy as well. I have heard over and over how strong I am, and I always feel we are as strong as God's forces us to be. When given a difficult situation, you have to step up and face it if you choose to live life. So I don't want to say that to you, I just want you to know as much as I wished you didn't have this pain as well, it's a comfort to have someone or some two understand this walk I have been on for several years. You two are just amazing!

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  60. I am a mother and a nurse...your baby boy's life will be remembered on my blog. Your story and picture will remain there as a reminder of your grace, strength, and bravery---and as a reminder of the courageous 8 hours of life your son fought to remain with his mother "in this realm." I wish you the best and as a mother couldnt be prouder of another mom....if that makes any sense.....
    God Bless you and your family....Amanda from Arizona

    http://nurseinterupted.wordpress.com/2012/05/20/inmemoryof-babygraysonjames/

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  61. Hi.. your page was sent to me by a friend. Our son, John Walter, was born on February 12th of this year, after 29 weeks in utero. He was diagnosed with Trisomy 18 at 19 weeks. I can relate so much with your journey, your feelings, and God's strength. He changed my world and the lives of others with John Walter's life, and he only lived for a few minutes; he was never able to take a breath. Thank you so much for fighting for life with me.. I also don't understand it, but God Bless you for your strength and testimony. I, too, have plans to write about my journey and John's short, but wonderful, life. I hope that God uses your story to reach others, and save the lives of innocents. If you happen to be on Facebook i'd love to be in touch.. Stacey Zoll, Manhattan, KS. God Bless you, your family, & little Grayson always..

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  62. I can't imagine the pain of losing a child that you carried for 9 months, but I do know that what is imperfect on earth is perfect in heaven. I pray the peace of GOD over you and your family! Thank you for sharing your story, it gives strength to others!

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  63. I just want to show you my support, every baby is a gift from God and they are beautiful creatures that remind us of the existence of God himself, my sister lost a baby girl just a couple of weeks before her due date, it was (still is) a very painful experience, but every single day I'm reminded I have an Angel above, and it is in my destiny to meet her again.I send both you and your beautiful family lots of love and you will definitely be on my prayers, thank you for sharing your experience!!

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  64. Heather, Grayson was as sweet, precious an lil angel, as ever I have seen. His memory will shine as brilliant as any light, in the hearts of those who loved him, for eight those hours, a lifetimes worth.Life is so fragile.I will be ever so thankful for every blessing in my life, thank you for sharing your story of love, courageous faith. May God bless your family.

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  65. I have no words to say what im feeling right now...my tears have overwhelmed my thoughts. I can only say God bless little Grayson, he is and always be a beautiful angel. and god bless you all, you are wonderful humanbeings, great parents. Thank you so much for being so strong and sharing your story!

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  67. am from Peru in South America ... I have for You and his family alone words of admiration, they were the best parents for Greyson ... I also perdi a son and what one feels .. but alone God gives us the necessary forces to continue forward ... they continue fighting for his idales and beliefs ... with deep respect and admiration... Karim Villaran Plaza

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  68. After seeing your story, I wrote facebook and complained. You are such a brave woman (and your husband is also so brave) to have been able to go through this. I could not even imagine! Grayson is beautiful. He was born and passed away the same day that my 91 year old great aunt, Allie (who raised my sister and I as well as our Mother and aunt) had a stroke that ended up taking her life on February 19th, just about a week before her 92nd birthday.
    I believe that she is up there in Heaven with your sweet Grayson now, both of them in their perfect forms being hugged and kissed by Jesus!

    Your story has brought me to tears and I know the grief must be painstakingly hard, but I admire how your family loved him and took all of those wonderful pictures while he was on Earth. He is in a far better place than we could ever imagine now! Reunion is real!

    May God bless you all!

    Sincerely,

    Christina
    Columbia, SC

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  69. It doesn't get easier, at all. It gets more complex.
    For me it has become part of who i am. It has infiltrated into every part of my life.
    Sharing your journey has effected this entire community.
    Be proud of the mother that you are to your sweet boy!!

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  70. Heather,
    As i read your story online I felt so connected to you, I gave birth to a baby girl with anencephaly in March. Everything you say about not wanting to forget, about the beauty of our sweet babies lives, it is as though you are echoing my thoughts. My family made the choice to love Sophie for as long as we were given her (95 minutes) and we don't regret a single second. I can see that your love for Grayson was the same. I pray that God will continue to hold you tight in the journey. It certainly has not gotten easier but we can rest in the arms of the Father.
    Rachel

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  71. I found your blog through a post on a different blog and my heart is heavy for you and your family for having to go through this but I'm praying that God would continue to strengthen you and I'm so glad you have shared your story and testimony. Grayson was a beautiful boy that will have forever left a mark on my life. I will pray for you daily.
    Amanda

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  72. Here is a beautiful story I read years ago in Christianity Today which has meant a lot to me written by a man who had recently lost a young boy who lived only two minutes after being born. Long prior to the birth, their doctor discovered a chromosomal anomaly which they knew would entail certain death within minutes of delivery. The doctor informed them that they needed to decide if they wanted to carry the pregnancy to term.

    "We both knew what he was asking. Susan found her voice first. Though shaken by the news, she said softly but clearly, 'We believe God is the giver and taker of life. If the only opportunity I have to know this child is in my womb, I don't want to cut that time short. If the only world he is to know is the womb, I want that world to be as safe as I can make it..."

    They named their son Toby, short for the biblical name, Tobiah, which means 'God is good.'

    Three months after Toby's birth and death the Marshall's other daughter Mandy, who was severely retarded "also entered eternity, just two weeks shy of her second birthday."

    "Why did God create a child to live two minutes?" Marshall asks in the conclusion of his magnificent article. His answer: "He didn't. He did not create Mandy to live two years. He did not create me to live 40 years (or whatever number of days he may choose to extend my days in this world). God created Toby for eternity. He created each of us for eternity, where we may be surprised to find our true calling, which always seemed just out of reach here on earth."(Marshall Shelly, “Two Minutes to Eternity,” Christianity Today, May, 1994).

    May your love for Grayson endure all your years, and may his memory be eternal!

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  73. Hello Heather, first off i am sorry about your loss. My name is Erica and I just found out a month ago that my baby is going to be born with Anencephaly and I'm soo scared and nervous I have never heard of this birth defect until now. I am 6months and having a girl. I also have two daughters but really I would love to talk to someone who has been through what I'm going through to know what to expect if it something you wouldn't mind talking to me about. If it is possible you can email me jennjan0708@yahoo.com I ran into your story when I was looking up this birth defect but I know things happen for a reason.

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  74. I am just speechless . May God bless him in Heaven . Thanks for sharing him with us here .

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  75. Thanks for sharing your story... and your blog is amusing..!
    lunch boxes for children

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