Our Miracle is Here

Our Miracle is Here
Welcome Little Angel Grayson James Walker

Sunday, May 20, 2012

Much needed Apology

Just a few days ago,  I posted a picture of my precious baby boy without his hat on.  Some wonder why it took me so long to post it.  Here is my answer: I was tired of trying to hide my son, the way he was, just to make others feel comfortable.  I felt like people would be scared or offended because his head didn't look like other babies.  A sudden impulse, in my grieving process, told me to be proud and not worried about the thoughts of others.  So, with one click, the photo of Grayson was posted.

The next morning after posting his picture, I had a huge box on my screen that said the "content" had been deleted.  Already feeling down and defeated, I became furious.  What "content" were they referring to? My son, Grayson James Walker, was considered to be something bad enough to delete!! I was offended, hurt beyond measure, and just angry.  I told Patrick about it and immediately posted a comment about my frustration.

At that moment, I had no idea what was about to happen.  I was just voicing my frustration, but it erupted into something so much bigger.!! I'm so glad it did.  Why? I was able to share the most precious gift of life with thousands upon thousands of people who would have never known him otherwise.  What satan meant for evil, God meant for so much good.  A baby boy, imperfect in the world's eyes, touched the lives of people all over the globe.   For this mistake on facebook's behalf, I've been able to share what God had intended in the first place.  This avenue, through media and such has raised awareness to anencephaly and quite simply the importance of choosing life.  For life is precious, and God's most precious gift.

After being interviewed by local news and our story and frustration being shared across the globe, I wondered if facebook would apologize.  That's all I wanted, an apology.  I didn't want to sue them, I just wanted them to allow me to do what I feel my right is...to share my baby boy with everyone else.

So today, after reading email after email, I saw it...an email from facebook. The email was an apology about removing his photo.   It made mine and Patrick's day and took the burden of offense off our shoulders.  That was never our intention in the first place.

92 comments:

  1. i just read about little grayson, please eccept my sincere condolances.i cannot even think of how you must feel but i am praying for you and your family til you are all together again. the pictures are precious

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  2. I just learned of your family's story and of Grayson's life. Your family and your faith has to be so incredibly strong. I do not know your family, but I feel so proud of you and thankful that you shared your story with the world. Thank you...

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  3. I had seen something on a website called radaronline and it had your blog link. I also saw them post that Facebook apologized. Good for them. Your baby has touched so many lives and his story deserves to be shared!

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  4. You write so beautifully. Thank you for sharing your son's story of his life with us. I'm sorry for your loss. He truly was a beautiful boy : )

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  5. you showed the world how much responsibility there is in concieving a child by giving him a chance at life,a chance to fight for it. So many parents dont understand the responsibility there is in becoming pregnant. When i read bout you and your family,i didnt care about fb or anyth4ng else,all that matters is what you did,the fact that grayson will be proud of you. Thank you teacher,as much as you are a light post for all those 5th graders,you are one to us too. . . . .

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  6. Thank you for sharing your beautiful Grayson with us. I saw your story through a link on Facebook and it hit home hard for me. Our little boy, Isaac was born last July with Trisomy 13. He lived for about 2 hours. I recently started a weekly link up on my blog called "wonderfully made" where I hope families like our's can connect, pray for, and encourage each other. I hope you don't mind, but I shared a link to your blog tonight. I felt like it fit in perfect with what I was writing about. Please feel free to check it out and link up. Little Grayson has already touched so many lives and I know he will continue to. Thank you for being so brave! You are a wonderful mommy and a wonderful witness for the Lord.

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  7. I got to know of you today on the internet. I'm glad that FB apologized for what they did. But I'm so sorry that you lost your precious, beautiful baby. The photographs are lovely! So much love there...from you both, your children, your other family members. I wish you hadn't lost your child. As a mum, I can't even begin to imagine the grief you must feel. At the same time I am amazed at your courage in the way you faced the whole experience. I pray that your hearts will be healed...I pray that you will meet your darling son one day...I pray that your lives will be blessed with peace and love.

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  8. There was an article in the biggest Dutch newspaper about your Grayson and what your family went thru with FB.
    The article was shared a few thousand times on FB. Here in the Netherlands we now know Graysons story, we have seen the photo's and we have seen the love you shared as a family even if it was only for a brief moment.
    Thank you for sharing your love for you son with the world!

    Grayson will never be forgotten, his memory will live in the hearts of many people all over the world!

    May God bless you and your family!

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  9. Dear Heather!

    I read in a swedish newspaper about your situation and how You were treated by FB and i got completely furious.

    What You have done its so remarkable so i get speachless. The decision to give birth to Grayson is alone altruistic and to cherish life itself.

    One hour of life is still a life - you got eight hours(?)and that will last for a lifetime.

    As a proverb we have in Sweden: "A little Angel came, to us homeward bound, smiled, and then (he/she) turned around".

    You and your family have my thoughts and God Bless You.

    Kindly Lillan

    ps. I link to the swedish newspaper, perhaps you can translate it if you are interested to read the article.

    http://www.aftonbladet.se/nyheter/article14853118.ab

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  10. Your baby Grayson is beautiful and we are so glad you shared him with us. God bless you all.

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  11. I am proud of you and your hubby for posting pictures of your perfect little boy created by God and according to his mighty plan. I also admire your will & instinctive love as a mother to do what is right~to carry him. My little boy was born still last October 29, 2011. I instinctly posted pictures of him on fb. He is my precious boy. He is beautiful and perfect and we are proud of him. I also made a you tube video. Sharing him is healing. I hope that we have encouraged other people to do the same. They shouldn't have to hide their children or suffer in silence because it may make someone else uncomfortable. I say that is what the delete button on fb is for. If they don't want to see Owen or hear about him they can delete me. We have since founded a non-profit organization to assist families with a similar loss. And, of course, Owen's pictures fill the brochures and our website! I love your blog and I am so very sorry for the loss of your precious and beautiful little boy! Here is a link to my blog: http://turntojoy.blogspot.com/

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  12. As a mom to a precious baby boy who was stillborn in August of 2010, I thank you for posting the photos of your son. I read about this on Radar online and was heartbroken for you, as well as the rest of us out there who are made to feel like our deceased babies are something to hide. I am so glad they issued you an apology. And I'm so sorry for your loss. My thought and prayers will be with y'all... I remember how hard that first year was for me.

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  13. Praise God for the precious life you enjoyed, even if just for a short time in person and praise God that in His wisdom He knew, before laying the foundations of the earth all about your precious, most beautiful baby (Psalm 139). And praise God that he is now in glory with the One who decided to take him home! We pray that God will continue to give you strength to face each day and to raise your other precious children in the way that they should go!(proverbs 22.6) Thank you for sharing your story and being such a witness to the world! In Christ alone, Rachel.

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  14. You and your family have my prayers. You are a strong voice for Grayson and many others. I can and will learn from this. I am amazed by your strength with god and life. Thank you for opening my eyes. I have four precious children and am truly blessed to share your story. God bless you....

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  15. Thank you for sharing your family's story. I will keep you and your family in my thoughts and prayers.

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  16. I read the article talking about how FB had to apologize to you and I HAD to come see your blog. You are such a strong, inspirational woman and I appreciate your strength. You have 3 beautiful children!!

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  17. i know what ur going through my son michael died in nov he had the same thing ur baby did if ever want to talk or anything i am here i need to talk to someone who knows what i went throught

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  18. You know when i was pregnant at age 40 and the genetic dr told me to have further testing due to my age that would give the baby a 1/200 chance of being miscarried i refused the additional testing and told her that we went thru ivf for this baby and i have felt it move so nothing would change my mind and i refused to risk having a miscarraige just to find out, she told me to go home and google downs syndrome, i filed a complaint,

    I guess what i really wanted to say was good for you and ur family that you made the choice you did to have grayson even if just for a few hours knowing the end result i find it couragious but it makes perfect sense to me, should u have had an abortion and pretended he did not exist why? Because he had no brain, i think he probably had more sense than alot of people i know or people that have made comments so negatively, sorry this is so long but it greatly irritated me that they deleted your photo but people post pics of their kids taped up and abused and fb takes days to remove them,

    Grayson is beautiful

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  19. I am so glad to see how much support, love and encouragement you are getting! We, as moms, need to support each other in times like this. Motherhood makes us all sisters, and faith makes all sisters in Christ!

    Please know i will be praying for you and your family!

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  20. God has blessed you in many ways. Thanks for sharing Grayson with us.

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  21. After reading through your blog I believe you made the right deciscion to keep this baby. Although, I am uncapable of understanding what kind of pressure this can cause on your family because of Grayson's syndrome, I think you deserve a statue. I am not sure whether I would be able to do what you have done so far. Bless you.

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  22. Thank you so much for sharing Grayson with us.

    He's God's perfect creation, period.

    Love to you all.

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  23. I have followed your story ever since you first started your posts about your experience. I am so inspired by your story as I'm sure thousands of others are across the world. I pray that God continues to bless you and your family, knowing you and your family are leaning TOTALLY and UNCONDITIONALLY on our Lord God and Savior for strength and peace. Thank you so much for sharing your story with the world and thank you for sharing your sweet baby Grayson. Again, you are an inspiration to me and to thousands around the world. Thank you again for your story. And yes, what Satan intended for bad, God intended for good and we know that God prevails and we already know how the Book ends. "WE WIN"!!!

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  24. May baby Grayson rest in peace. You are a very strong woman and I wish you nothing but the best for you and your family. No family should ever lose a child, but you did the best you could for you and your family.

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  25. I'm so glad that you spoke, and glad that FB got it together enough to apologize. Thank you. Biggest hugs and lots of prayers to you and your family.

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  26. I tried to post a comment earlier but wasn't sure if it posted or not. I apologize if I'm commenting twice.
    I just wanted to tell you that you and your family are amazingly strong, your faith is incredible and you are such an amazing woman. I know that God has a purpose for everyone in life and that he knows how things will unfold for everyone. I am deeply touched by your blog, inspired by your faith and optimism and impressed at your resolve. I am glad you got to share the joy and happiness of having Grayson in your life, if only for a few hours. As a nurse, I know that the maternity ward should be the place of wonderful memories and happy times. I hope you will remember those times and keep them in your heart forever. I know that Grayson will meet you in Heaven one day, and he knows that you loved him with all of your heart. God bless you and your family,
    Stephanie

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  27. I saw your story on perezhilton.com and I was angry with how Facebook deleted the photos of God's precious gift to your family. I am very deeply sorry for your loss of Grayson, but you and your family gave me the gift of life, even though it was very short. I pray that God gives you and your entire family the strength to get through this & consider him a blessing and a precious gift that God gave you. I always believe that God never puts his in a situation that we cannot handle. But I must say your blog brought tears to my eyes. God bless you and the family <3

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    1. gave him, not gave me *. Hard to type with tears in your eyes. sorry about that!

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  28. RIP baby Grayson. I dont think there are any words i can say that you dont already know. God Bless.

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  29. found your blog through a story on our local news in Nashville. Grayson was beautiful and I am so sorry for everything you are going through. Praying for your family!

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  30. With tears running down my face, I want you to know that your children are truly blessed to have you as their mother. My son Charlie, who is 21 months old, is my entire world. I don't know that I would have had the strength that you have shown. Bless you and your family. Grayson was truly beautiful.

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  31. RIP Angel Grayson, you have touched the hearts of so many. God bless you and your family.

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  32. I just wanted to let you know that you are a brave and wonderful woman/mommy. Thank you for sharing your beautiful baby boy with us. He truly is a precious gift from GOD.
    Candice

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  33. Heather~

    I learned of your story on The Blaze. Thank you for sharing your sweet baby Grayson with us all! What a precious spirit he has! He is truly beautiful! I pray that our Father in Heaven will continue to grant you peace and love as you so beautifully share Grayson and his important and amazing life mission with the world! What a wonderful reunion you have waiting for you all in Heavenly Father's arms! <3

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  34. Thank you for sharing your story with us. I am so sorry for your loss and I send you and your family my condolences. He was a handsome young man and I saw something almost like a glitter of a star in his eyes on your pictures you posted he is truly an angel. Please know that your strength has given others around the world a sense of hope and unity and most important faith. Thank you

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  35. May your BEAUTIFUL son Rest In Peace! God Bless You and your family!

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  36. Dear Heather,

    the love you have for your son, it brings tears to my eyes. I can relate to so many things, since my baby boy was stillborn three years ago. Your story is so heartbreaking, not just the whole fb thing. You are so powerfull to share his pictures! Why hide the most precious thing in the world, right? Heather, I can tell you, the pain... it will always be there, but I learned to be so proud of my boy to have chosen us as his mommy and daddy. To be a mommy of an angel, that is something special. God wouldn't give me anything I couldn't handle, I just wish He didn't trust me so much. All I can say, stay strong, but it's alright to break down and cry. Screaming at the top of my lungs to my favorite songs helps sometimes :-)

    Sweet Grayson

    Watch over you mommy, daddy, brother and sister, you hear? And if you get lost all the way in the sky, there is a little boy there, he knows his way around. Play around on the clouds, precious little one.

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  37. I read your story with tears in my eyes. I too, many years ago, 22 to be exact, had a baby with anencephaly. I wish FB had been around so I could have shared my little girl with all my friends! Good for you and many prayers for your family! Wendy Early

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    1. God bless you youg woman. A child is a child, and God can care less how any of us look. We all belong to him and some day you will have your child back.

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  38. Good for you mom and dad! I am so glad that you fought this with FB. I love children and I was more than outraged with FB. I tried to locate you on FB to let you know that ALL my friends raised hell with FB over that. My user name on FB is Dave5535 in Nebraska, I would be proud to have fighters like you two as friends, please consider it. God bless you all, and God has a new angel fighting for him and watching over you.

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  39. Heather,
    You are truely an amazing woman. When I read your story it did bring tears to my eyes, but it also brought love to my heart. The courage and love that your family have is amazing! May God bless you and your family. I know he keeps your precious baby safe and he is loved.

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  40. May the Lord gives you and your family strength and peace during this difficult time. I am sure you miss your precious baby boy. We're praying that Grayson is in heaven with Jesus - watching over his loving family.

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  41. Heather--you are an inspiration and beautiful in your strength, grace, humanity and even your grief. God bless you and your family, and especially your little angel in heaven, Grayson.

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  42. God bless you and your family! There are no words to express how Grayson's story moves me. I'm glad Facebook apologized. I'm glad Grayson was able to have such loving parents even for such a short time. Take care.

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  43. Reading Grayson's story and the amazing courage and faith of you and your family brought tears to my eye but through the tears I felt the amazing love in these words. Thank you for sharing and I pray God continues to give you and your family the strength you need to continue your walk down the path he has made for you. I also thank you for your obedience to God's call on your lives. Continue telling Grayson's story, it has touched me and reminded me how amazing God's love is.

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  44. God bless you both in your faith and in your strength. You have made a choice that few would make, just as we did...to cherish the child God made, for however long he let us hold him here on Earth. I can only imagine the comfort that your story and your blog would give to someone searching for a connection, or information, or empathy who was facing a similar situation. I pray for strength, comfort and peace for your precious family.

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  45. Thank you for sharing. He was beautiful and I am glad you allowed us to view what a precious little one that God allowed you to have.

    He was true gift from God and but it seems our Heavenly Father decided it was time to take him home.

    God bless you.

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  46. The strength and closeness of your family is something to be proud of. I just want to hug each one of you. There is so much love in your family! You brought this beautiful baby boy into this world with so much dignity all the way to the end. I can assure you he knew that he was loved. May you take comfort in knowing this. Thaks for sharing your story and keeping Grayson's memory alive.

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  47. Thank you for sharing the photos and videos of your precious Grayson. I saw nothing but a beautiful baby who was loved more in his short life than many are in a full lifetime. Seeing the pictures of Grayson with his siblings was amazing, no fear in their eyes, just love, shows what truly amazing parents you are.God Bless you all.

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  48. My little boy went home to our heavenly father on 02/23/12. I carried him inside me for 39 weeks, but I never got to see his eyes or hear him cry. I'm sorry for your loss. I can still smell my boy on my skin. I miss him so much. Every day I feel the sting of the pain in my heart. The days are long and empty. I'm sorry you are going through this. No one deserves this pain. Feel free to look through my blog- misseszee.blogspot.com

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  49. God bless you for bringing Him so much glory through the way you have handled this trial. I hope that he blesses you beyond your wildest dreams. I've read through the last few months of your blog just now and wanted to make sure I told you (b/c I read in a post you wanted Grayson to look like you) - he totally did! I thought that about his nose and lips before I'd even read that post. So glad he got to feel so much love from you and your hubby before he went home.

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  50. I know how you feel I was in your shoes about 5 years ago...if you need any support or would like to talk I could email you

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  51. What a beautiful boy. You are is in my prayers. May the Lord grant you strength and serenity. May He show his love in times of hardship so that you may know that He is with you and that your son is with Him who is love.

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  52. I had read your story on Yahoo two days ago, then reread it aloud to my husband. As special needs parents ourselves, I was horrified for you.
    It seems as if the special needs community, still, all these years later, is fighting for acceptance, still fighting for our children to be considered "acceptable", let alone equal.
    I'm so glad you received your apology and am so very sorry for all you have gone through. Loss is hard enough, without complicating it with judgement.

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  53. I am so happy you got your apology. I read about your issue through CafeMom and Wanted to reach out to you and say good job.

    Your little Grayson is beautiful and he is a little angel. Enjoy him, love him, hold him, and lift him up to God. May you find peace in the time that you have with him.

    Your family will be in my prayers.

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  54. I heard bits and pieces of your story over the last week and I stumbled upon a story on a news station that isn't in my area but was in my feed for some reason. Your story was the featured story this month. I feel honored to be able to read more about your angel. You're such an awesome mom and I admire the strength of you and your husband.

    Thank you for sharing him with us. I'm so glad they apologized for what happened. It's sad that so many distasteful and hateful things are allowed on Facebook and someone had an issue with your beautiful son.

    I would love to see Facebook take things a step further and perhaps do something in his name to bring awareness to Anencephaly.

    Be blessed and stay encouraged.

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  55. What a amazing story!, I'm glad you posted the pictures of your little angel.
    I'm glad that i had the oportunity to see your pictures and read your wonderful and so precious story.
    and I cried while i was reading, btw you write with sooo much spirit.
    God chose you to have that little and precious angel. Wow, what a blessing for you!. He, Our God trusted you and your husband to have him in your arms.
    Thank you soooooo very much for sharing, i won't forget Grayson.

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  56. Your faith is such an inspiration. Thank you for sharing your story of your precious son.

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  57. Dear ones,

    I just read about this situation with Facebook on a Portuguese newspaper's website. I would not have learnt about Grayson's inspiring life, and the way you cherished it, had it not been for this incident - as I am sure is being the case with many other people. I'm sending your beloved family of five my love, prayers, and appreciation. Today I was moved to tears.

    Love,
    Sahba

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  58. Your story is so inspiring to my wife and I. The first time I read about you, I nearly cried with my wife and was infuriated at facebook for doing this to you and your family. so much so that we deleted our account. You have so much strength and faith in the lord to share your story with everybody. You have a beautiful family that Grayson will always be a part of and someday soon you will all be reunited.

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  59. We're a portuguese couple and we have two beautiful sons with 1 and 3 years old. We're so touched by this story we've known on Público's facebook (a portuguese newspaper). We didn't know how to react in a situation like this, but you are an inspiration to us and to all parents throughout the world. I’m glad for the action of facebook: it allowed us to acknowledge your action and met Grayson James Walker, our angel.

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  60. I am so very glad that they apologized! You had every right to post a beautiful picture of your son, any mother would want to share the picture, and you should never have to feel ashamed, nor scared of how others will feel. He is perfect, beautiful and an absolute angel. If anyone was offended, well that is just sick on their part, who could be offended by such a wonderful child? Every child is beautiful, birth defects, childhood diseases and all. You have a gorgeous family and I thank you from the bottom of my heart for sharing your story with the world.
    Beki Farrell

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  61. i'm only 22 years old, i'm from peru and i can only think: SO MUCH LOVE IN SO LITTLE TIME... you are a great example of PARENTS & LOVE ..i'm so sorry for your lost but thank you for sharing because you show everyone what is really important in life.

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  62. Heather,

    My name is Stacy Johnson.

    First, I would like to tell you that the decision you made was a wonderful one.

    Second, I would love for you to email me. I have a book that I would like to suggest to you and speak with you about. One of the main issues is the decision of a main character to continue her pregnancy after learning that her daughter will have anencephaly. It is an amazing, moving, and inspirational book. If you are interested in this, please contact me @ Proud_mom_09@yahoo.com.

    You are an amazing and incredibly strong woman. You have my utmost respect. Greyson was beautiful.

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  63. Grayson is such a beautiful baby. I know I do not know you but I am extremely proud of you and your decision along with your entire family.

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  64. I just wanna tell you: God bless you !!! My family are with you......From Lima, Perú.......

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  65. Bless you, just... bless you. Grayson was a beautiful boy.

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  66. Gives so much hope read post like yours. Grayson was a very beautiful baby boy he was also a very lucky one because he found so much love waiting for him. God is with you and your family! And you are an example for the world!!!

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  67. ~I just read your story and can relate to your feelings. 5 years ago I found out that my unborn son was diagnosed with Trisomy 13, and a possible Congenital Diaphragmatic Hernia. Despite the odds, I too continued my pregnancy and was blessed with 8 days to share with Bennett-Chadlen. I too have a blog for him, and have posted photos on facebook only to have others report me, and had my ability to upload pics and share my blog links disabled for a period of time while they investigated.

    While your experience is tragic, I have witnessed hundreds of opportunities for families like ours to help educate others about our precious babies, and teach about unconditional love and pure acceptance of life's purest gifts.

    My heart is with you, and thank you for sharing Grayson with the world. We are forever changed through knowing him.

    Love, Peace, & Nimkee-Blessings to you and yours,
    Melissa, Nimkee's proud Mum xxoo

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  68. You, your family gave me back my faith in God. Thank you for being... who you are. Just thank you.

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  69. Thank you for choosing Life! My prayers are with you!

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  70. I just wanted to say I enjoyed the pictures of you beautiful family and Grayson. The love displayed here brought a smile to my face.
    Thank you for not allowing the world to stop you from sharing that with us. I was very upset to hear what facebook had done! Glad they changed their minds. Hope they can see the joy and love now as well as the beauty. God's peace to your family with such a tremdendous loss.

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  71. Heather,
    You, your husband, kids, and your extended family have gone through so much. You've been very brave. And the journey that you guys are going to go trough is going to be tough. I've been there, and I have a blog too. But I want to highlight that Grayson, because of your love and care, now exists, and he is watching you, and he is a place that eyes have not seen, ears have not heard, and mind cannot even imagine. Heaven is loving unto him, while he is on God's lap. Just as my triplet babies are there too. I hope they got to meet him too.
    Facebook did something similar to me. But I never complained publicly about it. I have tried to reach them several times, I wrote to them asking to remove the block. But nothing ever happened, they never replied to me. So, I'm so happy that at least they apologize to you. And as you said it, it has given you an open door to share the gift that God put into your life, and that now has blessed much more. I also watched the Grayson movie you posted on YouTube, with tears running down my face.... It brought me back memories when I held my three little ones...
    God bless you, your husband and your kids!

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  72. Heather,
    I too am a mother to an angel. My son passed in 2004 due to SIDS. i am so moved by your story and how God is using your story to bless others. I am praying for you and your family during what I know is a trying time. May God Bless you and your family.

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  73. Heather,

    Your story amazes me!! I wish we had more Heathers out there. Truly, God uses every single thing that happnes in this world for His own purpose. Greyson's short life (8 hrs) has impacted the lives of so many people already (through the right desicion you made)than millions of people out there that have lived many years. God doesn't make mistakes. Baby Greyson was not a mistake...he was God's plan!!!! Thanks for being obedient to God and for choosing to do the right thing. I know it was not easy to let your precious angel go but just remember that your reward is in heaven right in the same place where you'll meet your beautiful son again. May God continue to bless you and your beautiful family.

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  74. What a precious baby loved by you all so much. Bless you all and may you find peace as you grieve your loss.

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  75. I'm sitting here on my bed crying for your loss. What a beautiful little boy! So perfect in EVERY way! I just wanted to tell you that my heart is with your family and my prayer is that the Lord will continue to strengthen you all through His tender mercies. Today, in Heaven, he is healthy and well and waiting... God bless you during your continued journey here on earth, and may He welcome you into His kingdom one day with your little boy's open arms to greet you! <3

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  76. Thank you for sharing your amazing story with us. I do not know you personally, but I am inspired by your strength, love, and incredible faith. Your amazing story reminds us all to be thankful for each and every one of the amazing gifts that we are given by God. Thank you for reminding me that life is precious and the amount of time any of us are given here on earth is unknown. We should love one another and cherish our time together. I pray that you and your family are blessed with the strength and peace that you need to get through this difficult time. God bless you and again, thank your for sharing your story.

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  77. You had a lovely son who, from the pictures, lived a beautiful 8 hours. Bless you for loving him, he was clearly a gift.

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  79. This precious little boy was given to the parents perfect for him. Your unconditional love in the brief moments you all had on this plane together reflects the meaning of Agape love. I am so sorry for your loss. I am also so blessed to see the love that shone through you. This was your son. He will also live forever in my heart too.

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  81. I find myself in an awkward position. When I saw the picture of your son on FB, it was posted not as it was intended, but rather as a plea for money (by sharing the post) claiming your son had suffered his injuries from an automobile accident. As a nurse, I knew this was not the case and I reported the image to FB as spam. This was not in 2012, but more recently in January of this year. Just to be clear, the image being used was not the original originated from your profile. Some rather pathetic person has hijacked your picture to twist it to their own use. I wish that people in this world would stop and think how they would feel if their child were used in this way.

    I just wanted to tell you that I am in awe of the strength that you and your family have. I hope that FB now allows you to honor your sons memory in any way you see fit, and those who do harm are dealt with. May God bless you all.

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  82. i am truly sorry for your loss of beautiful Grayson. God definitely chose your purpose to be the parents even for a short time. Your faith is amazing i pray that this project you started will help many people wh/ it seems like it has already you have inspired many so far. thank you for sharing your story and Grayson with the world. you will be in my prayers.

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  83. I came across your story on my FB feed today and watched the video of your beautiful family welcoming Grayson while at the same time letting him go be with the Lord. I want you to know that you have helped others tremendously. Praying for you and yours.

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  84. Thank you for sharing your precious baby boy with the world. I am sorry he had to leave so quickly but I know he is with you always in your hearts. My prayers go out to you and your family. Rest in peace sweet boy.

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  86. Grayson was very lucky to have such a loving family. The rest of us are lucky to have had Grayson visit us. He has raised awareness for Anencephaly and he is an inspiration to others; just as you are. Be forever proud of him and God bless.

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  87. I came across Grayson's story in Sydney Morning Herald today and your traetment by FB. I felt compelled, with my 7 mo asleep beside me to write to say how beautiful Grayson is and how wonderful you are. Human love is boundless. Thank you.

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